Topic: Vanishing white matter disease- help find a cure
4evababy's photo
Sun 09/28/14 06:06 AM
Please everyone help spread awareness of this disease we need a cure my son has this and he is 12yrs old I've seen stories of children that have not made it and I don't want this to be the story of my son, you can like and share my fb page it's called vanishing white matter disease and other forms of leukodystrophy

4evababy's photo
Sun 09/28/14 06:22 AM
There is no cure or treatment for this disease that's what awareness is so important because it's rare and not a lot of people know about it, I need as many of you as possible to help raise awareness

Conrad_73's photo
Sun 09/28/14 07:44 AM
http://en.wikipedia.org/wiki/Leukodystrophy

no photo
Sun 09/28/14 07:55 AM
I do not know what to say for I have no words...


flowerforyou

 ☮️ Coolchic Dee 💟's photo
Sun 09/28/14 09:30 AM

PRAYERS for your son and for God to
help find a cure! :angel:

Cutiepieforyou's photo
Sun 09/28/14 01:41 PM
4eva, Prayers for your son and thanks for enlightening us on this disease. I am going to research it.

dreamerana's photo
Sun 09/28/14 02:38 PM
prayers for you and your son. I was reading about this and it reminded me of someone I know with ms. they don't have a cure but there appear to be things that slow it down.
im wondering if it could be something similar. sending you a big hug.

no photo
Sun 09/28/14 02:44 PM
Best wishes to you

4evababy's photo
Sun 09/28/14 09:59 PM
Thank you everyone and if you could all make copies of my profile pic and share it around as we with maybe some info on it?

4evababy's photo
Sun 09/28/14 10:03 PM
The one that's says find a cure for children

m3k4y's photo
Sun 09/28/14 10:20 PM
Best wishes to u..flowerforyou :heart: flowerforyou

4evababy's photo
Mon 09/29/14 03:46 AM
Come on over and like and share my fb page it's called vanishing white matter disease and other forms of leukodystrophy