Topic: Group for Parents of special needs children
PacificStar48
Joined Tue 10/02/07 Posts: 6339 |
QUOTE: I am right here with all of you. I have two children: a 1 year old daughter and a 2 year old son both whom has their own disabilities. My daughter was born at 30 weeks gestation. She has major heart conditions, on a feeding pump, required oxygen and blood transfusions. My son has kidney problems and has 3 blockages in his kidneys. He has developed hypertension due to the kidney issues. And has sensory intergration issues. If anyone has any information on sensory intergration in little children, I desperately need help. Thanks for listening. I would contact a Magazine called Exceptional Parent. They are great at resourceing people and give people wonderful support. Contacting a lady named Gail Lincoln in Lexington, Kentucky at the Lexington Red Cross. They have and 800 number. I will see what I can find for you. National Organization for Rare Disorders might be a good place to start. |
heathersaysgobucks
Joined Sun 01/06/08 Posts: 4948 |
I belong to several really good groups for parents of special needs children.
The first two are yahoo groups: SpecialChildExchange SCE-Equipment (this one is a spin off of the first and is solely for buying and selling outgrown or unneeded equipment and supplies) And also a great email group is called: OUR-KIDS@LISTSERV.SYR.EDU All of these have been lifesavers for me in the past. Super peer support and resources for finding things you need and can't afford or can't find otherwise. |
caution76
Joined Fri 04/10/09 Posts: 4 |
I have a soon to be 6yr old little girl with adhd and she's also bi polar. It's been nothing but a struggle to even get the right help she needed let alone someone who I can talk too. when you have only your 6yr old conversations are limited.lol so I would like to say hello to everyone. nettie
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earthytaurus76
Joined Wed 04/08/09 Posts: 6231 |
Ha! My son made Captain of his soccer team at school, and he has AWESOME grades, AND hes been so awesome, hes been going on field trips..
YYAYYYYYYYYYYYYYY!!!!! MY CHILD RULESS! |
njmom05
Joined Mon 04/23/07 Posts: 4452 |
QUOTE: Ha! My son made Captain of his soccer team at school, and he has AWESOME grades, AND hes been so awesome, hes been going on field trips.. YYAYYYYYYYYYYYYYY!!!!! MY CHILD RULESS! 
Congrats and way to go!!!!!!! |
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njmom05
Joined Mon 04/23/07 Posts: 4452 |
QUOTE: I have a soon to be 6yr old little girl with adhd and she's also bi polar. It's been nothing but a struggle to even get the right help she needed let alone someone who I can talk too. when you have only your 6yr old conversations are limited.lol so I would like to say hello to everyone. nettie Hi and welcome! There are some pretty amazing people here. 
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Soulbreeze
Joined Sun 08/09/09 Posts: 58 |
I have 3 children, one of which has high functioning Autism. It's hard being single. It's even harder being a single parent, but I think it's the hardest when you are a single parent with a special needs child!
I applaud all of you in this thread!  
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heathersaysgobucks
Joined Sun 01/06/08 Posts: 4948 |
QUOTE: I have a soon to be 6yr old little girl with adhd and she's also bi polar. It's been nothing but a struggle to even get the right help she needed let alone someone who I can talk too. when you have only your 6yr old conversations are limited.lol so I would like to say hello to everyone. nettie Hi Nettie! Welcome to the thread! I agree, it's hard to find people who understand. |
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heathersaysgobucks
Joined Sun 01/06/08 Posts: 4948 |
QUOTE: Ha! My son made Captain of his soccer team at school, and he has AWESOME grades, AND hes been so awesome, hes been going on field trips.. YYAYYYYYYYYYYYYYY!!!!! MY CHILD RULESS! That's great! |
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heathersaysgobucks
Joined Sun 01/06/08 Posts: 4948 |
QUOTE: I have 3 children, one of which has high functioning Autism. It's hard being single. It's even harder being a single parent, but I think it's the hardest when you are a single parent with a special needs child! I applaud all of you in this thread!
Clap for you too!! Welcome!
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earthytaurus76
Joined Wed 04/08/09 Posts: 6231 |
Yeah, hes doing awesome.
Thanks guys, each step he takes with his anxiety is one step closer to him coming home from boarding school! I MISS HIM!! 
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tohyup
Joined Wed 08/12/09 Posts: 1405 |
QUOTE: I have a soon to be 6yr old little girl with adhd and she's also bi polar. It's been nothing but a struggle to even get the right help she needed let alone someone who I can talk too. when you have only your 6yr old conversations are limited.lol so I would like to say hello to everyone. nettie ADHD can be terrible and can drive you nuts . There are meds for it but like nearly all meds there are side effects with them . You should talk to your doc for referrals to a specialiost . Good luck and best wishes . |
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njmom05
Joined Mon 04/23/07 Posts: 4452 |
Happy Thanksgiving to all the amazing parents here on mingle!
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