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Topic: Prayers, please
njmom05's photo
Thu 12/31/09 11:39 AM

Nicole... gosh I guess I missed your post. I'm glad you are both home now. My thoughts are with you and Christopher today! Sending a warm hug from Noah and I!

Awe...thanks, I'll take that hug and send one right back to you and your little munchkin!
flowerforyou flowerforyou flowerforyou

njmom05's photo
Fri 01/29/10 06:06 PM
Edited by njmom05 on Fri 01/29/10 06:39 PM
Well we had a WONDERFUL appt with Christopher's new neurologist yesterday afternoon. We spent almost 2 hours with the nurse practitioner and the neurologist. Lots and lots of questions about him and his history with Lowe Syndrome and the seizures. They told me that the dose of meds he was taking to control the seizures was ridiculously low! They said that as active of a child he is and his behavior issues that an EEG will NEVER happen. They doubled the dose of meds for the next week and then the following week, double dose in the morning and triple dose in the evenings. she said that he should have NO seizures on these meds and if he has even one in the next two weeks that she wants me to call them and they'll adjust the meds again. I feel so much better now that we've talked to the neurologist, she was amazing!!
:banana: :banana: :banana:

no photo
Fri 01/29/10 06:34 PM
Lifting you and your family up in prayerflowerforyou :heart: flowerforyou


njmom05's photo
Fri 01/29/10 06:39 PM

Lifting you and your family up in prayerflowerforyou :heart: flowerforyou



Thank you, HeartSoul
flowerforyou flowerforyou flowerforyou flowerforyou

no photo
Fri 01/29/10 06:46 PM


Lifting you and your family up in prayerflowerforyou :heart: flowerforyou



Thank you, HeartSoul
flowerforyou flowerforyou flowerforyou flowerforyou


You're more than welcomeflowerforyou :heart: flowerforyou

I'm glad you found a good neurologist. That is a true blessing!

njmom05's photo
Fri 01/29/10 06:48 PM
I am so happy, I was skeptical since its a Childrens Hospital doc and I've had nothing but bad luck with those docs. But this one is amazing, she sure knows her stuff! The nurse practitioner was amazing as well.

no photo
Fri 01/29/10 07:01 PM

I am so happy, I was skeptical since its a Childrens Hospital doc and I've had nothing but bad luck with those docs. But this one is amazing, she sure knows her stuff! The nurse practitioner was amazing as well.


I'm so glad!

I just love good news!

njmom05's photo
Fri 01/29/10 07:12 PM


I am so happy, I was skeptical since its a Childrens Hospital doc and I've had nothing but bad luck with those docs. But this one is amazing, she sure knows her stuff! The nurse practitioner was amazing as well.


I'm so glad!

I just love good news!

Me too! My son needed the good news as well.
:thumbsup: :thumbsup: :thumbsup:

no photo
Fri 01/29/10 10:19 PM
So happy he has a good doc.drinker :banana: .It can be tough for these little ones to good care sometimes.
Lots more prayers,hugs,kisses sent his way!flowerforyou flowers

njmom05's photo
Sat 01/30/10 06:02 AM

So happy he has a good doc.drinker :banana: .It can be tough for these little ones to good care sometimes.
Lots more prayers,hugs,kisses sent his way!flowerforyou flowers

Thanks Wolfchic! I think we found a winner with this doc! Hugs and prayers for sweet Maddy May as well!
flowerforyou flowerforyou flowerforyou flowerforyou

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