Topic: Group for Parents of special needs children
mygenerationbaby's photo
Thu 12/31/09 07:48 AM

You're welcome, I know I love those poems!
flowerforyou flowerforyou

Hi NJ Mom,
Do you think you might be able to find out who wrote the poems? We are all so touched and moved by them. I'd like to be able to say who wrote them before sending them to anyone. Maybe you could email the originator and ask them where they came from. Thanks again, My Genbiggrin

njmom05's photo
Thu 12/31/09 03:52 PM


You're welcome, I know I love those poems!
flowerforyou flowerforyou

Hi NJ Mom,
Do you think you might be able to find out who wrote the poems? We are all so touched and moved by them. I'd like to be able to say who wrote them before sending them to anyone. Maybe you could email the originator and ask them where they came from. Thanks again, My Genbiggrin

Hmm...I don't have the original email anymore, but I'll do some searching online. They've got to be on there somewhere. flowerforyou

njmom05's photo
Thu 12/31/09 03:57 PM
I found a website with all of them listed in order and at the bottom it says

"Author Unknown"

http://www.angelfire.com/on2/EvasGarden/TheDisabledChild.html

That is the site I found all of them listed on.

PacificStar48's photo
Sat 01/02/10 04:59 AM
If people want to see some great books about and art of special needs kids Look up the name Robert Perske. I would think they are still in print but they go back about 30 years.

njmom05's photo
Sat 01/02/10 03:54 PM
Here is another one I stumbled across today, thought it was pretty amazing, too! Enjoy flowerforyou

MY PERFECT CHILD
As my children were born,
I wanted them to be perfect.
When they were babies,
I wanted them to smile
And be content playing with their toys.
I wanted them to be happy
And to laugh continually
In stead of crying and being demanding.
I wanted them to see the beautiful side of life.
As they grew older,
I wanted them to be giving instead of selfish.
I wanted them to skip the terrible twos.
I wanted them to stay innocent forever.
As they became teen-agers,
I wanted them to be obedient and not rebellious,
Mannerly and not mouthy.
I wanted them to be full of love,
Gentle and kind hearted.
"Oh, God, give me a child like this" was often my prayer.
One day he did.
Some call him handicapped...
I call him Perfect!!

no photo
Sat 01/02/10 07:07 PM

i think this is an amazing idea of a group.
I'm 17 and have a 16 month old son.
i found out back in June that he was epileptic.
and now.
they're concerned with him being autistic.
it's been a long 16 months but its taught me so many things.
its great to have a group that's not just for parenting the average child.

I have a sister who started having epilepsy seizures at 6 months old . She has been on meds since then to control them . If she does not take her meds the seizures come back . I use the word " MUST " and say you must take her to a specialist because epilepsy is a very serious neurological problem . Good luck and my best wishes to both of you .

bl4ckb1rd's photo
Sun 02/21/10 12:53 PM
My son is a high functional autistic, with anxiety, ocd, add/adhd, and mild behavioral outbursts. He is only 5 yrs old.

I do have a question, what is a developmental pediatrician job? My son is seen one very 6 months. He also sees a genetic doctor. His autistism is not genetic.


njmom05's photo
Mon 02/22/10 05:10 PM

My son is a high functional autistic, with anxiety, ocd, add/adhd, and mild behavioral outbursts. He is only 5 yrs old.

I do have a question, what is a developmental pediatrician job? My son is seen one very 6 months. He also sees a genetic doctor. His autistism is not genetic.



Hi and welcome to mingle.flowerforyou I am not sure what that pediatrician is for. We just have one for medical appts (immunizations, colds, etc). Does your son get early intervention services?

bl4ckb1rd's photo
Fri 03/05/10 04:05 PM
He did when he was younger, now he goes to a public school.

njmom05's photo
Fri 03/05/10 04:11 PM

He did when he was younger, now he goes to a public school.

Thats good, does he get therapy at school? flowerforyou

njmom05's photo
Fri 04/02/10 07:10 AM
Sending Easter wishes to all the amazing moms, dads and special kids out there.
flowerforyou flowerforyou flowerforyou

Gossipmpm's photo
Fri 04/02/10 11:15 PM
Happy Easter to you and yours!

And everyone!!:heart:

PacificStar48's photo
Sat 04/03/10 10:50 PM
Happy Easter!

Hope everyone is doing well. As the worst of winter is fading I hope folks are looking ahead to summer and the needs that will be there for recreation and daycare.

Fortuneately there are many great camps for children with special needs but they fill up fast and if you need help to pay for the costs scholarships need to be applied for early.

Great places to look for these camps are the National Level of the organizations around your child's primary diagnmosis. Easter Seals, Cerebral Palsy, and Association of Retarded Citizen's, National Amputee Association, Boy/Girl Scouts, and Special Olympics Neman's Cancer camps come to mind to mention a few. Parks and recreation of your city and state also have adapted recreation programs. If one of your child's parents is military there are a few programs through the Exceptional Family Memeber Program. For example Ft.Knox Ky. has a massive athletic program playday.

These camps can be a huge boost to your child's self esteem and understanding of possible abilities. It is a physical challenge but the emothional break of being with peers can be a huge releif in a safe and fun environment.

Also a real wake up call for parents to see their own need for respite, peer experiences, and looking to the future.

no photo
Sun 04/04/10 08:22 AM
May all your Little Angels have a very Happy Easter!
Remember how Blessed You are1For God has blessed you with your own Little Angels!!
God Bless!flowers :angel: flowers :angel: s

njmom05's photo
Mon 04/12/10 07:10 PM
I talked to my son's former respite provider tonight and she agreed to begin his respite again. We moved out of the area for the last 5 years and I ran into her by chance at the hospital back in December. She gave me her number but I've been waiting til Christopher's seizures were better controlled. She said she'd get back to me in the next few days. It's been almost a year since I had a respite weekend.
:banana: :banana: :banana: :banana: :banana:

no photo
Mon 04/12/10 09:47 PM

I talked to my son's former respite provider tonight and she agreed to begin his respite again. We moved out of the area for the last 5 years and I ran into her by chance at the hospital back in December. She gave me her number but I've been waiting til Christopher's seizures were better controlled. She said she'd get back to me in the next few days. It's been almost a year since I had a respite weekend.
:banana: :banana: :banana: :banana: :banana:



Nice!Give that little boy a hug & kiss from us!flowerforyou flowers

njmom05's photo
Tue 04/13/10 05:45 AM


I talked to my son's former respite provider tonight and she agreed to begin his respite again. We moved out of the area for the last 5 years and I ran into her by chance at the hospital back in December. She gave me her number but I've been waiting til Christopher's seizures were better controlled. She said she'd get back to me in the next few days. It's been almost a year since I had a respite weekend.
:banana: :banana: :banana: :banana: :banana:



Nice!Give that little boy a hug & kiss from us!flowerforyou flowers

Thanks, will do. And you know there are hugs and prayers for sweet Maddy May!
flowerforyou

no photo
Sat 04/17/10 09:24 AM
God Bless U all!! I vollenter for special olympics every year and a;ways get way more back than anything I put in!!

no photo
Sun 04/18/10 03:26 AM

God Bless U all!! I vollenter for special olympics every year and a;ways get way more back than anything I put in!!



:heart: flowerforyou flowerforyou :heart:

no photo
Sun 04/18/10 03:34 AM



I talked to my son's former respite provider tonight and she agreed to begin his respite again. We moved out of the area for the last 5 years and I ran into her by chance at the hospital back in December. She gave me her number but I've been waiting til Christopher's seizures were better controlled. She said she'd get back to me in the next few days. It's been almost a year since I had a respite weekend.
:banana: :banana: :banana: :banana: :banana:



Nice!Give that little boy a hug & kiss from us!flowerforyou flowers

Thanks, will do. And you know there are hugs and prayers for sweet Maddy May!
flowerforyou



Yes I do.And she is sucking every one of them up!:heart: drinker drinker :heart: