So are safely at the hospital and the video feed and leads are all set up for testing on my child for a week. Stuck like chuck in bed, but here to keep him occupied and watch over him. Love my Angel. Praying the Lord lets us finds some answers.

Seakolony,

prays for Your loved one are in the air For healing.

Thank you.

Sending prayers your way for you and your angel. Stay strong.

My prayers for your strength and healing for your loved one! Blessings to you and yours!

Thank you

So we have reduced the medications to try and cause a seizure to film and measure the brain wave patterns at this time. If not we may need to reduce medications further to get the desired affect.

May the Lord and Lady watch over and protect you both during this time...

I can not tell you much the support I receive here means to me. Thank you so very much.

What happend to your son

He has had a seizure disorder most of his life. we have gone through a majority of medicines, vns surgery twice the batteries and leads burned out within 4 years each time. They are looking at possible brain grid surgery. I have been to Colorado and checked into Charlottes Web. If all else fails I may end up trying that method eventually. Charlottes Web however is not a cure either.

My son wants to grow up and drive a semi truck. I give up my life to make his dreams come true hopefully.

So his medicine has been cut huge again hopefully he will react soon. Goodnight Lord. Watch over my family, friends, people that protect and serve, people that save others, people that help others, our wonderful, nurses, and doctors. In Jesus name I pray. Amen.

So he is starting to show some muscle jerks today. Doctor should be in here in a few hours. I have been sick all night. food poison from the cafeteria yikes. EWWWW. I do not think they kept up the temps or it was there too long, IDK.

I hope your son is doing better. He is in my prayer circle.

You are a strong mother.
I pray hard your son will be okay . And his dreams will come true

Thank you for being so sweet and supportive while I journal our experience. I met someone from the UK in the hospital who has a child with cancer. They are here for proton therapy which an immunology treatment for cancer. These treatments are so amazing. They actually create an immunization for a person specific cancer. This therapy has worked for family and friends here in the US. Hopefully, this therapy will be everywhere before too long.

So I meditated before going to bed and slept well. I woke up at 545am, and after his arm jerking motions yesterday, he had a 2 - 3 min seizure yesterday. No abnormalities seen. The neurology dept wanted to restart his meds. I decided against the meds until I spoke with the doctor. I felt we needed a few more examples to see as previous EEG showed seizures in the frontal lobes. The doctor agreed with me on the subject. Apparently these seizures were recorded in the back of the brain. So confusing the contradictions.

So the whole week ended in an epic fail. No abnormalities to be found. The testing indicated a completely different areas of the brain than originally advised. I am more confused than I ever was. We will be discharged today. Disappointed in a major way.